Awareness… If you know you know 12 Mar 202412 Mar 2024 Having been diagnosed with Turner's syndrome at birth, due to a swollen foot leading to the appropriate tests, the condition was never a secret from me. My understanding of what…
TS Stories The Beauty Beneath our Scars by Annelie N 8 Nov 20238 Nov 2023 Being strong? They say, you gotta be strong, They say, don`t let the mask slip, But sometimes, real strength, Is to allow yourself to feel. Sometimes, it`s Painful and ugly, And hopeless,…
Awareness… Facing the odds 12 Sep 202312 Sep 2023 Being diagnosed with TS in utero or at birth already feels like odds have been stacked against you. The way I see it though is Turner's Syndrome women and girls…
Awareness Butterfly 29 Aug 202329 Aug 2023 Butterflies are wonderful things. Slowly they spread their beautiful wings. They speak with pride. They sour in their own stride. With a beauty in the wind that sings. You can't…
TS Stories What I Wish 25 Jul 202320 Jul 2023 When I was just a little girl my parents were told, I had a condition called Turner's meaning I had to be bold. I was told this could go wrong,…
Awareness TS and gender 2 May 2023 There has been a lot of discussion lately about TS and it only occurring in females. The National Organisation for Rare Disorders describes, “Only females are affected by Turner syndrome,…
Awareness… The Big Question by Alison Harvey 11 Apr 2023 As TS women we face a lot of extra challenges. There are often a host of specialists to see, health checks to make and rights we have to advocate. It's…
Awareness… Taken Seriously by Tracey Connelly 14 Mar 2023 Talking to a group of young TS women lately there was an issue raised that I believe is worth opening for discussion. There was a consensus within the group that…
Uncategorized million steps challenge 10 Jan 2023 The new year brings new horizons and with that in mind we are looking to make this year the best yet. With that in mind we are excited to have…
Uncategorized At Risk by Annelie N 24 Oct 2022 … Is every one of us,And diagnosed as terminal the instant we are born, Few tough realize their fate,Few of us can cope,With reading in their cards,Of risks and doom…
Uncategorized The Road is Never-Ending by Jyoti Upadhyay 21 Mar 2022 Written 23/7/2019 I am pedaling till my last breath,To Reach my destiny;After a while I took a pause, to dry my sweat;But, everyone is running towards their destiny,And I too started pedaling again,But,…
Awareness… A Day that Changes Our World by Annelie N 11 Oct 202128 Nov 2021 Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…
Fundraising Fundraising to support girl children with Turner’s syndrome by Avijita Kharel 12 May 202112 May 2021 I am a person who loves all forms of life. I have huge concern for social issues. I do my best to be mindful of my own impact in the…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness… My TS Story – Tracey Connelly 26 Mar 201926 Mar 2019 Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Awareness… A little support makes a huge difference! 21 Aug 2018 Have you heard of Turner's Syndrome? It occurs in 1 in about 2500 girls and women across the world and yet there are still many who haven't heard of it.…
Awareness A World of Information 6 Mar 20186 Mar 2018 We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…
Awareness… Turner’s Syndrome and Us; by Racheal Chapman 16 Oct 2017 t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness… Too Many Chromosomes Spoil the Broth; by Faye Price 12 Oct 201712 Oct 2017 This can certainly be the case for a minority of unborn babies. Whilst many of our womb bound children are tucked away fully formed, developing that much – loved ability…
Awareness… Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska 6 Oct 20176 Oct 2017 In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…